Thanks
GP (General Practitioner)
You are feeling bladder contractions which are leading to leakage.
A specialist nurse could help look into catheter problems that can occur. These problems are a reduced bladder capacity which occurs with long term urinary catheterisation and can be helped with the use of a catheter valve or clamp in order to increase bladder volumes prior to emptying. Commonly, material forms at the catheter tip (this is called “encrustation”). This material consists of crystals and is more likely to occur in an alkaline urine (in turn related to proteus bacteria that can cause the alkaline urine). Encrustation blocks the holes in the catheter tip that drains the urine, and can result in leakage or pain caused by blockage. Treatment is difficult but some people suggest drinking plenty, or an antibiotic if proteus is isolated (though it will be difficult to clear), or different types of catheters. The catheter nurses are very familiar with this problem that occurs in up to 50% of people with long term catheters.
A urine infection could also be contributing to the problem although the urine of anyone with a long term urinary catheter will have bacteria in it and the bacteria will likely come back again (changing the catheter at the same time as taking the antibiotic would be ideal). This is a controversial area simply because it is considered “normal” to have bacteria in the urine when there's a catheter in place, but seems sensible to at least consider the option of antitiobics with a catheter change if other things aren't working, especially if there is proteus.
Finally, there are tablets called “Anticholinergics” that reduce bladder spasms (eg. tolterodine). These tend to cause dry mouth or drowsiness, constipation, but one of these side effects will probably by tolerated if it much improves the symptoms. Very best of luck.
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