Please verify your email address to receive email notifications.

Enter your email address

We have sent you a verification email. Please check your inbox and spam folder.

Unable to send verification, please refresh and try again later.

  • Q&A with Australian Health Practitioners

    How to manage life with Ehlers-Danlos syndrome?

    Related Topics
    Congenital & Genetic Conditions Ehlers-Danlos Syndrome
    I have Ehlers-Danlos syndrome along with the symptoms of muscle weakness, chronic fatigue and dental problems. How can I care for myself on a daily basis?
    answer this question

  • Find a professional to answer your question

  • 3

    Thanks

    Michelle O'Sullivan

    Occupational Therapist (OT)

    I have extensive experience in the management of hypermobility disorders including Ehlers-Danlos Syndrome. I work exclusively with patients with hypermobility conditions. Having graduated from the … View Profile

    EDS is an unpredictable condition which often causes pain, fatigue and a range of other symptoms. Management of EDS is important so that you can maintain your independence as much as possible. 

    Pacing is going to be the best technique you can learn to help you self manage your pain and fatigue. This involves not overdoing things on the days you feel well and have lots of energy, as this often backfires and catches up with you the next day. 

    Physiotherapy can be helpful in learning exercises to increase and maintain muscle strength and mobility. Hydrotherapy can also be very beneficial for people with EDS. 

    Seeing an Occupational Therapist to help with maintaining your independence in your activities of daily living is also important and can greatly improve your quality of life.

    Dental hygiene should be managed by your dentist.

    Reply to this post
     · 
    Report
    Reply to this post

    You must be a Health Professional to reply to this post. to your account or now (it's free).

answer this question

You must be a Health Professional to answer this question. Log in or Sign up .

You may also like these related questions

Related Fact Sheets
Related Questions

Empowering Australians to make better health choices