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Q&A with Australian Health Practitioners
How to care for a child with Trisomy 18?
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Our baby has Trisomy 18 and due to his heart abnormalities and kidney malformations, he will not be able to care for himself. Given that the survival rate is low, what are some tips on caring for a child with Trisomy 18? -
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Anonymous
Hi,
S.O.F.T Australia (support organisation for Trisomy) is a non-profit organisation that has been formed by parents, who have been in this very position. Working together with the medical profession, educators and the wider community SOFT aims to provide support to families, friends and relatives during this difficult time.
S.O.F.T. Australia
Phone: 02-9521-6039
http://members.optushome.com.au/softaus
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The Association of Genetic Support of Australasia facilitates support for those affect directly or indirectly by rare diseases (80% of which are genetic in origin). … View Profile
The Chromosome 18 registry is an excellent support organisation and they are involved in research studies.
www.chromosome18.org/Report this post
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