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  • Q&A with Australian Health Practitioners

    Are there support groups for people with albinism?

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    Albinism Congenital & Genetic Conditions
    My husband and I just gave birth to an albino child. As no one “outgrows” the physical symptoms, we are worried how it may affect our child emotionally through teenage and adulthood. Are there support groups available for those with albinism?
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    Anonymous

    A great place for you to start will be the Albinism Fellowship of Australia(AFA). As per their website “The AFA’s key purpose is to provide support, education and fellowship to those with albinism, parents of children with albinism as well as their families and friends” http://albinismaustralia.org/
    Im sure you will find some great support through this organisation.

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    Albinism Fellowship of Australia

    The Albinism Fellowship of Australia (AFA) is a national, non-profit organization established in 2005. The AFA is a registered charity. The fellowship is run by … View Profile

    The Albinism Fellowship of Australia has a very active Facebook page with almost 400 members, which means that you can get realtime support and advice. The AFA also runs biennial conferences which is a great source of education and peer support. Additionally, state branches regularly hold social gatherings. 

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