CJD Support Group Network
About
The CJDSGN promotes aware of CJD and other prion diseases, provides information packages for families and health care professionals, a national education program, annual national conference and links those personally affected together for mutual support.
The CJDSGN advocates on behalf of those we represent, liaise with health departments, health care professionals and prion experts who can offer information and advice when required.
The CJDSGN assist families to fundraise to support the Australian research team working in the field of prion disease.
The CJDSGN is a founding member of the CJD International Support Alliance.
Answers contributed by CJD Support Group Network
9 Answers | 4 Thanks
What causes Creutzfeldt-Jakob disease?
This answers depends on which form of Creutzfeldt-Jakob disease the question is referring to.
Sporadic CJD - It is believed to be the result of a spontaneous conformational change in the native prion protein that occurs…
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What is Creutzfeldt-Jakob disease?
Creutzfeldt-Jakob disease (CJD) is a rare and fatal degenerative disease in humans. CJD is one of a group of diseases known as transmissible spongiform encephalopathies (TSE's) or prion disease that affects humans and animals.
CJD affects…
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Is Creutzfeldt-Jakob disease preventable?
As Creutzfeldt-Jakob disease (CJD) is transmissible then the answer has to be yes for some forms of CJD but for sporadic CJD, where there is no known cause, then it is unlikely that it can…
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What are the signs and symptoms of Creutzfeldt-Jakob disease?
Symptoms that develop and progression of the disease will vary from patient to patient but usually will include
:• Balance and coordination problems
• Headaches
• Challenging behaviour and sometimes aggression
• Visual disturbance
• Incontinence
• Inability to communicate
• Cortical…
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How is Creutzfeldt-Jakob disease diagnosed?
A diagnosis of Creuztzfeldt-Jakob disease (CJD) can only be confirmed by a brain biopsy (not recommended due to transmission risks) or autopsy. In some patients an EEG, MRI and a lumbar puncuture test looking for…
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