Albinism Fellowship of Australia
About
The AFA’s key purpose is to provide support, education and fellowship to those with albinism, parents of children with albinism as well as their families and friends. While the albinism community in Australia is only small, the AFA provides a united voice to encourage productive developments and support within business, government and media.
Our mission is to :
• Provide fellowship within the Australian albinism community,
• Promote understanding of albinism to our stakeholders,
• Foster relationships with international albinism networks.
Our vision is to facilitate universal the understanding, acceptance, celebration of albinism in Australasia
Answers contributed by Albinism Fellowship of Australia
11 Answers | 21 Thanks
How is albinism diagnosed?
Albinism is diagnosed by looking in the back of the eye and seeing the changes in the retina (back of the eye) that are classical for albinism.
There are other tests that can be done,…
Read more
Does albinism run in families?
With Oculocutaneous albinism (OCA) affecting eyes and skin, you only show the condition if you have two copies of the abnormal gene. Therefore, most people with this condition will not have a relative in a…
Read more
What causes albinism?
Albinism is caused by a change in the genes that make the pigment melanin.
To have the condition, you need to have a “double dose” of the different gene, one for your mother and one…
Read more
What is albinism?
Albinism is a rare genetic condition where the body makes less of the pigment which gives us colour (melanin) than usual.
Melanin gives colour to the hair and skin and is also important for the…
Read more
How can my child's teacher help him in school?
Depending on the vision of your child, they may be entitled to additional support from a visiting teacher. The class teacher can assist by considering seating and light in the classroom (making sure the child…
Read more
